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Periodic Paralysis
I wrote in here last fall abut my symptoms and was diagnosed finally after 18 yrs only 3 mos ago. I have hypokalemic periodic paralysis disorder, with myotonia. I am doing better despite nightime paralysis happening more. I am looking for anyone out there with this disorder to talk to. I went to a neurologist in Hershey, PA and he frustrated me, now I am seeing another. But everyone is scared to prescribe me anyform of potassium. I am on spiro something...k sparing medicine. I live off of milk with Carnation instant breakfast in it or the equivalant to around 1000mgs of K. But if my face is frozen, what do you do? I can not talk or swallow in this instance. Anyone know anything or the Dr. can help I would appreciate the wisdom.
Answer:
Periodic Paralysis
Hi paintergal,
Welcome to the forum> I don't know anyone with this condition. Why are they scared to prescribe postassium? I hope you receive some sound medical treatment, sounds scarey. Heres a link where they mention diet also.