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Hi I have never posted in here before. I just thought cause I responded to some posts that I would Introduce myself. I have a beautiful daughter I did have a picture of her on here till they changed the board. I have to put a new one ... SHe just turned 6 She was diagnosed at birth with Turners syndrome. WHen she was 3 days old she had open heart surgery. SHe use to have some severe sensory problems but now she has grown out of most of it with the help of some great therapists. She also has some autistic qualities. Her Doctor just told me she has ADHD... Which is some times confuesed with Sensory Integration DIsfuncion which she is also diagnosed with. SO i have to take her to a neurologist to sort it all out now. If anyone needs to compare the two though there is a great book called the OUT OF SYNC CHILD. You should read it it compares SID, ADD, and ADHD. ANd what to look for and how to tell them apart as well as gives advice. BUt anyways. My daugher on the 6th just had a surgery done on her lower part of her spine to repair a teathered cord it was very successful. In the begining of October she as Diagnosed with Chiari Malformation with a Syrinx that she will have to have Surgery for in Feb. On her Brain stem and the upper part of her spine. ANd for the woman who said her Daughter has down syndrom. Turners is the exact opposite. Instead of having and extra x chromosone she has one less she is 45x 45x as upposed to 46x 46x. I am sure I have alot more to say but no more time. Plus this is getting pretty long.
Thank you for listening!
Kelly and ALyssa (6)
Answer:
Welcome to the Special Needs section. I remember there is another member out there whose child has Turner's syndrome. The Out of Sync books are great. I've got all three. I'm actually going to be getting ds a rubber pad for his chair at home. His OT at school put him on one in class to stop his wiggling around on the slippery chair, and his teacher thinks it's wonderful. He has grown up so much in the past two years. The nice thing about SID is that, with the right coping skills, therapies, patience and tools, they can cope. They will always have issues (I'm literally like the princess and the pea - I feel everything in my clothes and on my sheets - can't have any dirt at all on the sheets - it feels like stones!), but coping skills help so much. SID can lead to OCD - like behavior, but the child doesn't necessarily have OCD, but rather uses the behaviors to cope with the incoming sensations. It's like they are highly in tune with their bodies, and it's so distracting! Thank you for sharing.
Answer:
Welcome and I'm glad your here. I also have to agree the the Out of Synch books are great I also found the Sensory Sensitive Child to be wonderful also. I look forward to reading yoour posts and hopefully when I run out of ideas for my 4 DDs in regards to sensory I can hit you up for some fresh ones.