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I was just wondering how things work in other States? Is it a waiver system? What services are offered? Is there a waitlist?
We are on a waiver in Wyoming. Each waiver is given a dollar amount. Hunter has 29K each year. Because he is just 3 he gets services at the Child Development Center, like headstart or preschool. He gets speech theraphy and OT. But it is all in school setting and he is not pulled out. He goes 3 days a week, 2.5 hours each day.
The waiver pays for housekeeping and respite, but there are no providers in my area. They should pay for fencing but won't, won't pay for ABA, carseats, stroller, GPS, nothing. We sued to get the 4200 from his waiver for the consultant and that took over 4 months.
From what I am told I should be grateful to live in Wyoming where they have so much....what, cow poop???
What is your state like?
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I haven't even tried for ours, as I don't think he would qualify. However, if I'd known then what I know now, I'm pretty sure he would have qualified at a younger age.
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I am on the med waver list....5-7 years is what I am told. Big 0, no money, no help. My son is in a pre-k class 2 days a week per school district.. I have to beg our insurance to pay for things. Took me almost 2 years to get a wheel chair, and that was with the Shriners help. My son has CP, non verbal, can not talk or walk or sit up. There is no way I could ever go back to work. My social work degree has gone to fighting my insurace. FL is BAD!!!!!
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I will second Julie+6. FL is BAD! In FL they have early intervention until 3, then I think it goes to the school board. My son also has CP and I have had to beg for everything. The equiptment can get expensive, he needsd forearm crutches now because he is too unstable on his feet. Insurance will not pay so I will be buying them myself. Luckily they are not too pricey, I am hearing about $100. The wheelchair I did get insurance to pay for, but it was a battle for several months.
We are also on the med waiver waitlist, by the time he gets on he will probably be almost an adult...
What bothers me the most is that no one tells you anything about resources, there should be a database or a compiled list of resources somewhere.....
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In our state we have been very fortunate. They had dd in o to 3 from the day she came home. they have a program called Kati Becket and all disabled kids qualify it will pick up what insurance wont. there is a government program that covers things that ma or insurance wont cover. The county case worker called me and tolled me about it. It paid for dd special stroller, disabled potty seat. Any special toys she needs, shoes. The lady told me if they don't use all the money for the county for the year next time they get less. Dd is now in early childhood through the school. All her therapy is provided that way in the summer it comes from her Kati Becket. We could get respite paid for too but no one is a provide in a 100 mile radius. So I just live with it. We do not qualify for her ss so we don't get that. My nephew is disabled and has pretty good help in IL but their pretty low on income and do receive his ss so he gets ma.
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I know Idaho also has Katie Beckett but could you please tell me more about what is offered on the program?
Thanks, April
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I googled it and it is part of the states medicaid program. It looks like your state does not have this or maybe they use it differently. Our state looks like they have an offshoot program for autism. Look it up maybe it can help you.