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Just curious on if there were any other parents who have a child with cleft palate. Dd was born with an incomplete cleft of the secondary palate....
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No, but my former boss and good friend had a dear son born with it, so I was there with him and his wife during the many surgeries on the cute little guy. There were others around me as I was growing up. There are so many degrees of the cleft and different things needed.
The surgery options these days are awesome, and you can barely tell there were ever any issues on so many of the kids. I wish you strength and success. One thing that I felt bad about is my friend and his wife were so hesitant to give medicines to their little guy - they would wait until he wailed in pain before giving in. There was no need to. We're talking about Tylenol here, and sometimes Tylenol3 (which I understand, with the codeine), and it's ok to use that stuff everyday short term. They also hesitated to call their doctor when something, like abnormal bleeding, happened. Nine times out of 10, there was something wrong. They finally learned to find a doctor they were more comfortable with.
Both my kids needed surgeries around seven and nine months for different reasons. It's hard, no matter what. I was lucky to have good nurses and Drs. They let me suit up and accompany the kids into the op room and cuddle while the mask went on to knock them out - kids didn't even know what was up until 9 seconds before they were out. And they let me be there to hold them as they awoke. Be sure to ask, if not offered. They also had warm blankets ready for ds, but not dd. Again, ask. Good luck!
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My cousin was born with a cleft lip & palate. He's 23 now. I know he had surgeries when he was a baby, and at least one really big oral surgery in high school, but other than that, he's done really well.
Your dd is beautiful, by the way!
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My husband is an oral surgeon and has repaired many in the past, did I miss you saying, was it repaired??
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Originally Posted by SecretSister
My husband is an oral surgeon and has repaired many in the past, did I miss you saying, was it repaired??
Not yet. She's 3 months now, and will be having it done between 9-12 months. Do you know how long the surgery normally lasts? And how the recovery is?
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I'll ask! Obviously my last post I had signed in under secret sister so I could post in that section. I can be such a goofball.
Is a plastic surgeon or oral surgeon doing the surgery??
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I think it's a plastic surgeon. I'd wish it would be at an actualy children's hospital, done by an oral surgeon, but unfortunately it won't be...
Thanks for asking!
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that is too bad that an OMS isn't doing it, they are much more educated in oral structure and esp reconstruction.
Is it completely soft tissue???
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Oh and he said this morning that there is a oral surgeon in Chapel Hill who is well know for cleft reconstruction, right now I can't remember the name. I am guessing he is associated with the school there but I didn't ask.
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Originally Posted by ABG
that is too bad that an OMS isn't doing it, they are much more educated in oral structure and esp reconstruction.
Is it completely soft tissue???
Yes, it is completely soft tissue. Just the back part of the palate. I wish an OMS was doing it. I mean, I'm sure a plastic surgeon will do well, but we want the best, you know?